Cosmopolitan Magazine Covers Dysautonomia!
In case you haven't seen it yet, there is currently an article on Cosmopolitan.com written by fellow dysautonomia patient Ilana Jacqueline who provides Cosmo readers with a first-hand account of her...
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It's EDS Awareness Month!
No, it is NOT erectile dysfunction syndrome awareness month, nor is "EDS" an acronym for that! EDS stands for Ehlers-Danlos Syndrome and May marks a special month of awareness for this life-altering...
View ArticleDysautonomia International's First Annual Patient Conference & Lobby Day...
Here is a highlight video of the 2013 Dysautonomia Patient Conference & Lobby Day held in Washington DC earlier this month! It was a tremendous success for dysautonomia patients and physicians alike!
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On Losing the Ability to do What You Love
"...I was dancing again, every muscle effortlessly engaged, articulating in perfect synchronicity."About a month ago, one of my best friends sent me an article that brought me to tears. While I'm sure...
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October was Dysautonomia Awareness Month! How Did You Celebrate?
It's the last day of Dysautonomia Awareness Month! How did you commemorate the occasion? Many people spread awareness online, through successful social media campaigns like "Thumbs Up for Dysautonomia...
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Cleaning Tips for the Chemically Sensitive
This post has been a long time coming. While my chemical sensitivities are not as severe as they used to be, I still consider myself a highly sensitive individual when it comes to smells. Luckily I am...
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Lemon Juice, Coconut Oil, Apple Cider Vinegar, Oh My!!!
I was so excited to discover the above chart on MindBodyGreen.com. I am all about utilizing natural, chemical-free remedies whenever possible. I intend to try all these products for the various uses...
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Cucumbers are Cool...And Curative!
While I very seldom read email forwards, the ones from my grandma tend to be useful and from reputable sources. This one, detailing the health benefits and myriad household uses of cucumbers, caught my...
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POTS: The Pretty Girl Disease?
While I may be a tad bit biased, I think POTS patients are among the coolest people in the world. Also among the prettiest. And is it some sort of eerie coincidence that there are many potsies who are...
View ArticleShop at Amazon to Support Dysautonomia Research!
Whether you're a big holiday shopper or simply make purchases from Amazon once in a blue moon, please shop through this link to support dysautonomia research. Simply use the Amazon search box on the...
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My Childhood Idol Coped with Chronic Illness Too!
Every oh so often I get nostalgic for the great 1990's. For me, my childhood represents a simpler time when I was blissfully healthy and carefree. I was always singing and dancing. And so were my...
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Liebster Award!
I am honored to have been nominated for a Liebster Award by one of my favorite new bloggers and fellow potsy Brittany at Fabulously Faint. Admittedly I don't know much about the award except for the...
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2013 Year In Review
This year brought a lot of major life changes and new beginnings for me. Mostly positive ones. I moved to a new home in a different location and am now (finally!) comfortably settled in here. I am...
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2014 In A Nutshell
On the eve of a very important appointment with a very important neurosurgeon, I find myself brimming with anxiety over the occasion. You'd think after seven years of health drama doctor's appointments...
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October is Dysautonomia Awareness Month! What are you doing to raise awareness?
This October marks another great annual Dysautonomia Awareness Month. It is always so awesome to see the patient community rally together and do amazing things to help raise funds to support research...
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So True!
A friend and fellow dysautonomia warrior posted this on her Facebook this morning and it really resonated with me! People in the chronic illness community are among the strongest, bravest on earth.
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I love to hear from you!
A BIG thank you to Mary over at A Body of Hope for making this for me! I love to hear from my readers and read your blogs! If you have a blog of you're own please share it with me! It is always great...
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One Lovely Blog Award
Thanks so much to Mary over at A Body of Hope for nominating me for the One Lovely Blog Award! Here are seven facts about me:1) I have a growing nail polish collection and recently started dabbling...
View ArticleI Need This In My Life!
This just might be the greatest music video there ever was. Apparently CouchCar.com is a thing, a SoCal thing. Props to Taylor Locke Music for showing the world how to travel in comfort and...
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Ehlers-Danlos Syndrome and Chiari Malformation: What’s the Connection?
The most common form of Ehlers-Danlos syndrome (EDS type 3) occurs in an estimated 1 in 5,000 people, according to Medline Plus. It is a genetic disorder that affects connective tissues throughout the...
View ArticleThe Sara Syndrome
This presentation by Dr. Rekate really resonated with me. It captures the typical experience of patients suffering from dysautonomia, joint hypermobility, chiari malformation and craniocervical...
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I Am Thankful for The Chronic Illness Community
Every year on Thanksgiving I take a minute to reflect upon what I am thankful for. I have found hope, solace and support among the chronic illness community of spoonies, zebras, potsies and...
View ArticleSurvival Mode
The past few months I've been stagnating in survival mode due to horrendous, persistent pressure headaches at the base of my head and upper neck. Throw in some charlie horse muscle spasms on the sides...
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In the middle of difficulty lies...opportunity?
As I sit quietly awaiting a CT scan of my diseased sinuses wearing a 24-hour holter monitor, a neck brace and a mask over my face to protect my weakened immune system in a waiting room full of...
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September is Chiari Malformation Awareness Month!
Visit http://csfinfo.org for more information and a growing body of research on Chiari. Be sure to wear purple to help spread awareness during the month of September!
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